The SMA Victor

Spinraza, also known as nusinersen, is a prescription medicine used to treat Spinal Muscular Atrophy in both pediatric and adult patients. SMA is c...

One common misconception is that SMA only affects a person’s ability to walk, but the condition can impact much more than mobility. SMA affects mot...

Spinal Muscular Atrophy is found in approximately 1 in 11,000 births in the United States and affects all races and genders.  The rarity of SMA can...

SMA is commonly associated with muscle weakness, mobility challenges, breathing difficulties, swallowing concerns, and loss of physical function, b...

SMA affects the motor neurons in the spinal cord, which are the nerve cells responsible for sending signals from the brain to the muscles. When tho...

The main types of Spinal Muscular Atrophy are often described as Type 0, Type 1, Type 2, Type 3, and Type 4. Some forms appear before birth or duri...

SMA is most commonly caused by missing or non-working copies of the SMN1 gene, which leads to low levels of survival motor neuron protein and progr...

For people living with SMA, building strength through exercise and physical therapy does not mean pushing the body beyond its limits; it means supp...

SMA weakens the muscles used for movement and it can also weaken the muscles involved in breathing, coughing, and clearing the airway. Respiratory ...

As research advanced, the SMA community began seeing disease-modifying treatments that target the biology behind the condition rather than only tre...

Some of the most common SMA symptoms include muscle weakness, low muscle tone, limited mobility, delayed motor milestones, difficulty sitting, stan...

Living with Spinal Muscular Atrophy can involve medical appointments, fatigue, accessibility barriers, dependence on caregivers, fear of illness, c...