Authors Who Have Spinal Muscular Atrophy
Several authors living with SMA have used writing to challenge disability stereotypes and give readers a better understanding of life with a progressive neuromuscular condition. One well-known example is Shane Burcaw, who lives with SMA Type 2 and wrote the memoir Laughing at My Nightmare, sharing his experiences with disability through humor, honesty, relationships, independence, and everyday life. His work has helped bring Spinal Muscular Atrophy awareness to audiences who may otherwise have known little about the condition.
Another important voice is Ben Mattlin, an author, journalist, and disability-rights writer who was born with Spinal Muscular Atrophy. His books include Miracle Boy Grows Up, In Sickness and in Health, Disability Pride, and Unbound: Notes from a Reluctant Disability Activist. Through memoir, journalism, and commentary, Mattlin has explored disability rights, relationships, independence, accessibility, and what it means to live in a society that often creates more barriers than the disability itself. Victor Guerra (Victortheinspiration), who is part of this growing group of voices. Living with SMA Type 2, he wrote Become the Victor: Turning Trials into Triumph, a book centered on adversity, resilience, faith, mental strength, and transforming difficult life experiences into purpose.
Watch Full Episode on YouTube:
Connect with Victor Guerra:
Personal Instagram:
https://www.instagram.com/Victortheinspiration/
The SMA Victor Instagram:
https://www.instagram.com/TheSMAVictor/
The SMA Victor TikTok:
https://www.tiktok.com/@TheSMAVictor
The SMA Victor Podcast Episodes:
https://www.youtube.com/playlist?list=PL7BT7VJqpaR7rASeJHidduTFEcqLSA0Ic
The SMA Victor Q&A:
https://www.youtube.com/playlist?list=PL7BT7VJqpaR7YFKqOYqs8lCeih48RO-5B
Learn More About SMA:
https://youtube.com/playlist?list=PL7BT7VJqpaR5ZI1hZ5dkVPIfjbdqvPnZE&si=WRV8gj2102jCn6mI
The SMA Victor FAQs:
https://www.youtube.com/playlist?list=PL7BT7VJqpaR4Mzd1ul1g2_XHy4Jn61oOK
The SMA Victor Music:
https://www.youtube.com/playlist?list=PL7BT7VJqpaR50uUMYbVhYsdncM-Bf1mO1
Victor's Life with SMA:
https://youtube.com/playlist?list=PLXeepRh23LFqpR6iOdsaVjgYaeRX5u_eP&si=fYKi0SN0JL1KVtcf
My book, Become the Victor: Turning Trials into Triumph, tells my personal journey and offers guidance for anyone who feels stuck, discouraged, or unsure how to move forward. It is a reminder that “your greatest tests will become your greatest testimony.” It is available online at Barnes & Noble, Amazon, iTunes, and Google Play Books.
Get My Book:
My Author Website:
https://christianfaithpublishing.com/books/?book=become-the-victor
Barnes & Noble:
https://www.barnesandnoble.com/w/become-the-victor-victor-guerra-victortheinspiration/1149224892?ean=9798901061305
Amazon:
https://www.amazon.com/gp/aw/d/B0GHB1KQNH/ref=tmm_pap_swatch_0
iTunes:
https://itunes.apple.com/us/book/isbn9798897855186
Google Play Books:
https://play.google.com/store/books/details/Victor_Guerra_Victortheinspiration_Become_the_Vict?id=YYTCEQAAQBAJ
ReaderHouse: