The SMA Victor

High-dose Spinraza, also known as nusinersen, became an FDA-approved treatment option for pediatric and adult patients with Spinal Muscular Atrophy...

On March 30, 2026, the FDA approved the high-dose regimen of Spinraza, or nusinersen, for pediatric and adult patients with SMA. Spinraza works by ...

Individuals living with Spinal Muscular Atrophy, also known as SMA, generally retain normal sensation throughout the body, including the ability to...

SMA can affect muscle strength, mobility, endurance, hand function, posture, breathing, and the amount of energy required to complete everyday task...

Fruits can be a valuable part of a balanced diet for individuals living with Spinal Muscular Atrophy, also known as SMA, but no fruit can directly ...

Early intervention is one of the most important factors in improving outcomes for people with Spinal Muscular Atrophy, also known as SMA. SMA cause...

Early signs can vary depending on SMA type, age of onset, and severity, but may include low muscle tone, delayed motor milestones, difficulty sitti...

Living with Spinal Muscular Atrophy, also known as SMA, often means navigating a level of muscle weakness and fatigue that other people may never f...

Spinal Muscular Atrophy treatment has changed dramatically from an era when care focused almost entirely on managing symptoms to one where multiple...

High-dose Spinraza has become one of the most talked-about Spinal Muscular Atrophy treatment developments of 2026. On March 30, 2026, the FDA appro...

An adult living with Spinal Muscular Atrophy, also known as SMA, may be able to consume alcohol in moderation, but there is no universal amount tha...

Several authors living with SMA have used writing to challenge disability stereotypes and give readers a better understanding of life with a progre...