The SMA Victor

A positive mindset cannot cure Spinal Muscular Atrophy, reverse genetic changes, or replace medical care, physical therapy, adaptive equipment, and...

One common misconception about SMA is that physical disability automatically means cognitive disability, but that is not accurate. Many people livi...

When discussing whether a healthier diet can boost muscle strength for those with SMA, it is important to understand the difference between support...

While cold hands are not the defining symptom of Spinal Muscular Atrophy, they can be connected to the way SMA affects muscle activity, movement, c...

Supporting someone with SMA begins with understanding that every person’s needs can be different depending on their SMA type, age, treatment histor...

For individuals living with SMA, the need for disability accommodations is not about special treatment — it is about equal access, safety, dignity,...

SMA is a motor neuron disease that affects the nerve cells in the spinal cord responsible for sending signals to the muscles. SMA affects motor ner...

SMA can weaken the arms, hands, trunk, neck, legs, and respiratory muscles, driving can become more complex than simply getting behind the wheel. F...

For individuals living with SMA, boosting physical strength does not mean forcing the body beyond its limits or treating exercise like a cure. Inst...

SMA can impact how a person moves, communicates, travels, conserves energy, and completes physical tasks, it can also shape work life in major ways...

Evrysdi, also known as risdiplam, is a disease-modifying SMA treatment designed to help the body make more functional SMN protein by targeting the ...

For individuals living with SMA, medical equipment and assistive technology are not signs of defeat — they are tools that can improve safety, indep...