Why Individuals with SMA May Need Daily Care?
SMA weakens the muscles needed for everyday activities, some individuals may need daily care to help with eating, bathing, dressing, bathroom support, transfers, wheelchair positioning, respiratory care, medical equipment, and mobility. Severe muscle weakness causes many individuals with SMA to rely on home care for complex daily needs, including eating, bathing, bathroom support, safe transfers, and respiratory care.
Daily care for Spinal Muscular Atrophy is not about taking away independence; it is often what makes independence, safety, comfort, and quality of life possible. Depending on the person’s SMA type, age, treatment history, fatigue level, breathing needs, swallowing ability, and mobility, support may come from family members, personal care attendants, nurses, therapists, or other trained caregivers. Physical and occupational therapy can help children and adults with SMA maximize muscle function and accomplish activities of daily living, while Cure SMA emphasizes the importance of airway clearance, breathing support, nutrition, movement, and individualized care planning.
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Learn More About SMA:
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Victor's Life with SMA:
https://youtube.com/playlist?list=PLXeepRh23LFqpR6iOdsaVjgYaeRX5u_eP&si=fYKi0SN0JL1KVtcf
My book, Become the Victor: Turning Trials into Triumph, tells my personal journey and offers guidance for anyone who feels stuck, discouraged, or unsure how to move forward. It is a reminder that “your greatest tests will become your greatest testimony.” It is available online at Barnes & Noble, Amazon, iTunes, and Google Play Books.
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