Essential Resources for Individuals with SMA to Know
Because SMA can impact so many areas of daily life, individuals and families often need more than a diagnosis — they need trustworthy resources, medical guidance, community support, and education that helps them make informed decisions. Cure SMA offers community support programs for newly diagnosed families, teens, adults, caregivers, supporters, and healthcare providers, including information packets, care packages, independence assistance packages, travel resources, and an equipment pool that loans necessary medical equipment free of charge to individuals with SMA in the United States.
Essential resources for individuals with SMA can include neuromuscular specialists, genetic testing information, newborn screening education, respiratory care guidance, physical therapy, occupational therapy, nutrition support, mental health resources, adaptive equipment, school accommodations, workplace accommodations, transportation support, and disability benefits education. The Muscular Dystrophy Association’s Care Center Network includes more than 150+ care centers and affiliates across the United States where individuals with neuromuscular diseases can access multidisciplinary care, clinical trials, and community support.
Watch Full Episode on YouTube:
Connect with Victor Guerra:
Personal Instagram:
https://www.instagram.com/Victortheinspiration/
The SMA Victor Instagram:
https://www.instagram.com/TheSMAVictor/
The SMA Victor TikTok:
https://www.tiktok.com/@TheSMAVictor
The SMA Victor Podcast Episodes:
https://www.youtube.com/playlist?list=PL7BT7VJqpaR7rASeJHidduTFEcqLSA0Ic
The SMA Victor Q&A:
https://www.youtube.com/playlist?list=PL7BT7VJqpaR7YFKqOYqs8lCeih48RO-5B
Learn More About SMA:
https://youtube.com/playlist?list=PL7BT7VJqpaR5ZI1hZ5dkVPIfjbdqvPnZE&si=WRV8gj2102jCn6mI
The SMA Victor FAQs:
https://www.youtube.com/playlist?list=PL7BT7VJqpaR4Mzd1ul1g2_XHy4Jn61oOK
The SMA Victor Music:
https://www.youtube.com/playlist?list=PL7BT7VJqpaR50uUMYbVhYsdncM-Bf1mO1
Victor's Life with SMA:
https://youtube.com/playlist?list=PLXeepRh23LFqpR6iOdsaVjgYaeRX5u_eP&si=fYKi0SN0JL1KVtcf
My book, Become the Victor: Turning Trials into Triumph, tells my personal journey and offers guidance for anyone who feels stuck, discouraged, or unsure how to move forward. It is a reminder that “your greatest tests will become your greatest testimony.” It is available online at Barnes & Noble, Amazon, iTunes, and Google Play Books.
Get My Book:
My Author Website:
https://christianfaithpublishing.com/books/?book=become-the-victor
Barnes & Noble:
https://www.barnesandnoble.com/w/become-the-victor-victor-guerra-victortheinspiration/1149224892?ean=9798901061305
Amazon:
https://www.amazon.com/gp/aw/d/B0GHB1KQNH/ref=tmm_pap_swatch_0
iTunes:
https://itunes.apple.com/us/book/isbn9798897855186
Google Play Books:
https://play.google.com/store/books/details/Victor_Guerra_Victortheinspiration_Become_the_Vict?id=YYTCEQAAQBAJ
ReaderHouse: