Spinraza "My life blessing"
Click on the link I have provided here or go to Spinraza.com to learn more of what it is and how it works.
I started taking Spinraza in high school and my SMA was getting weaker where it was hard to write, it became more challenging to feed myself, it also even became hard to hold my cell phone..
Since I started taking Spinraza I can now write, I can now feed myself, I also can now use my cell phone because it is part of my work, and keeping contact with family and friends.
June 17th, 2020 I will be getting my 10th Spinraza injection and I am seriously really looking forward to it! It’s a blessing.
I have not personally did much research on other medications besides Spinraza. But what I can say is it would take a really high success rate and some miracle medication to have me switch from Spinraza to another.
With Spinraza it hasn’t always been a straight up hill climb now that I’m taking it, no. Taking Spinraza is like life.. we will have our moments with having our highs and lows. One of my personal favorite quotes is “Life is like a heartbeat. If you don’t have any ups and downs.. it means you’re not living.”
I made a YouTube video talking about it. Go to 1:28 (or you can watch the whole thing too) here: https://www.youtube.com/watch?v=lt4mGX3bB6U&feature=youtu.be