Update on how my SMA has been:

Update on how my SMA has been:

I have been doing really good especially during this time before I get my next Spinraza injection! Usually right now during this time around the third month after I get my Spinraza injections I start to feel more fatigued than usual. It usually becomes a real patience game for me with eating, feeding myself, brushing my teeth etc.. with other daily routines.

Fortunately I have been doing quite well mentally & physically. (I still have my good and bad days when it comes to my SMA here and there, but we all have our “off” days, yah know.)

YOUR BOY VIC IS GONNA BE FLIPPING HIS WHEELCHAIR OVER TURNING INTO THE HULK SOON!! Lol *posts video pushing my wheelchair 

Maybe I’m too optimistic within this lifetime, but “there is nothing wrong with hoping that better exists ahead.”